Patient Voice – Experts by Experience
The WSA / Just Ideas partnership has worked on a range of projects to encourage and build participation of patients to inform health services, policies and strategies. We have and continue to advocate for stronger involvement of people living with a range of conditions in the design of services and to build representation.
Alongside that, we work directly with people with lived experience to support them in sharing their experience to drive change.
The WSA / JI partnership has been commissioned to support Patient and Public Voice (PPV) Representatives within NHS England through offering a two-day training programme in different locations across England. The training is also open to some NHS staff members who want to better understand the PPV role.
In May 2018, the WSA / JI partnership facilitated a two-day course in Geneva that provided a great opportunity to learn about the lived experience of people living with non-communicable diseases (NCDs) and assist them in using their voices in their roles as advocates and campaigners.
Asia Patient Action Groups
WSA’s experience with empowering patient voice translated well to South-East Asia, where Wendy Sugarman along with Helen Garforth of Just Ideas facilitated three days of sessions aimed at those working with patients and to empower patients themselves.